202. Nutrition Care in Cystic Fibrosis: Filling Gaps and Navigating Change
Recent developments in cystic fibrosis (CF) treatment have required re-thinking nutrition care for individuals with CF. Improved treatment options have increased longevity for many patients, but how they may affect nutrition status is unclear, as is how nutrition status affects lung function and other outcomes. RDNs must adapt nutrition counseling to accommodate a population facing longer lives and higher risk of chronic diseases, but little evidence-based information is available to guide practitioners. Speakers will describe results from systematic reviews conducted by the Evidence Analysis Library examining appropriate nutrition assessment measures, the relationship between diet and nutrition-related outcomes, and the relationship between nutrition status and hard outcomes for patients with CF. Finally, speakers will describe case studies of different practice scenarios involving nutrition care for patients with CF and discuss evidence-based approaches to addressing individual needs.
- Describe how the current landscape of nutrition care for cystic fibrosis is changing and what the associated challenges are for the RDN.
- Examine the current research regarding the validity of nutrition assessment tools as well as the efficacy of dietary intake in addressing nutrition-related outcomes for individuals with CF.
- Apply evidence-based knowledge of nutrition assessment and interventions to CF nutrition care settings.
Learning Need Codes:
- 5290 Metabolic disorders, Inborn errors (disease/disorder)
- 6020 Counseling, therapy, and facilitation skills
- 9020 Evaluation and application of research
- 10.2.9 In collaboration with the client and interdisciplinary team (including NDTRs), selects and implements current and evidence-based nutrition interventions and patient education.
- 6.2.5 Applies research/evidence-based findings to improve practice, service delivery, and health and nutrition of customers.
- 8.3.6 Keeps abreast of current nutrition and dietetics knowledge and trends.
Ellen Bowser, MS, RDN, LDN, RN, FAND
Associate in Pediatrics, Faculty Nutritionist
University of Florida
Julianna Bailey, MS, RD, LD
Registered Dietitian and Quality Improvement Coordinator
University of Alabama at Birmingham Cystic Fibrosis Center
Laura Padula, MS, RD, CSP, LDN
Advanced Practice Dietitian
The Children’s Hospital of Philadelphia